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Self Help UK

Self Help Groups

  • The Pick's Disease Support Group

    The PDSG supports carers of people with a wide range of rarer dementia diagnoses. We offer advice, information and support via regular meetings and Newsletters for the sharing of problems, feelings and ideas.
  • The PseudoXanthoma Elasticum Support Group - PiXiE

    The Pseudoxanthoma Elasticum (PXE) Support Group (PiXiE) is a non-profit making charitable trust, founded in 1984 by Elspeth Lax and run entirely by unpaid volunteers, supporting sufferers of Pseudoxanthoma Elasticum
  • Treacher Collins Family Support Group

    Support, information and advice about this congenital form of cleft palate and associated problems.
  • Tuberous Sclerosis Association of Great Britain

    The Tuberous Sclerosis Association (TSA) is the UK charity that supports individuals, promotes awareness, and seeks the causes and best possible management of Tuberous Sclerosis Complex (TSC).
  • Turner's Syndrome Society

  • UK Familial Spastic Paraplegia Group

    Provides mutual support, information and help for sufferers and their families.
  • UK Thalassaemia Society

    Counselling groups for carriers, affected individuals and families.
  • Unique - The Rare Chromosome Disorder Support Group

    Unique is a source of information and support to families and individuals affected by any rare chromosome disorder and to the professionals who work with them. Established in 1984, Unique is a UK-based charity (1110661) but welcomes members worldwide. Membership of Unique is free but the group...
  • Wolf Hirschhorn Syndrome Trust for the UK and Ireland.

    The Trust achieved charitable status in 1994 however the original support group was founded in 1978 by the late Chris Hilder who wanted to ensure families caring for someone with WHS could access information - both medical and practical. The primary aims of the Trust remain the same as Chris' and...
  • Xeroderma Pigmentosum Support Group

    The Xeroderma Pigmentosum Support Group is a UK charitable trust founded in 1999 by parents of a child with xeroderma pigmentosum. The group aims to relieve the needs of persons with xeroderma pigmentosum and other related conditions, and their families. The Group raises funds for research,...