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Self Help UK

Self Help Groups

  • Genetic Interest Group (GIG)

    The Genetic Interest Group (GIG) is a national alliance of organisations with a membership of over 120 charities which support children, families and individuals affected by genetic disorders. Its primary goal is to promote awareness and understanding of genetic disorders so that high quality...
  • Gorlin Syndrome Support Group

  • Gretton Homes

    Gretton Homes offers long term residential care to people with Prader-Willi syndrome. Gretton Homes consists of eight houses, all of which are specifically managed for people with Prader-Willi syndrome. Almost 70 people with Prader-Willi syndrome are supported in these houses, and come from all...
  • Haemochromatosis Society

    For those people affected by genetic iron overload and professionals.
  • Hereditary Multiple Exostoses Support Group

    HME, hereditary multiple exostoses (also referred to as diaphyseal aclasis and familial bony spurs) is usually, but not necessarily, an inherited condition which can produce bony lumps close to the end of any bone. The HME Support Group has the following aims: To offer support to families...
  • HITS (UK) Family Support Network

    Family support group set up by affected families to support other families by email, telephone and letter. Offering support to help reduce the sense of isolation felt .
  • Holt-Oram Syndrome Support Group

  • HSP/FSP Support Group

    The HSP/FSP Support Group helps people diagnosed with Hereditary Spastic Paraplegia [also known as Familial Spastic Paraparesis (FSP) or Idiopathic Spastic Paraplegia]. It is a UK based 'self-help' group and was started in 1989. They now have over 300 members in the UK. The Group aims to...
  • Human Genetics Commission

    Human Genetics Commission is the UK Government's advisory body on new developments in human genetics and how they impact on individual lives. They give the Government advice on human genetics with a particular focus on the social, ethical and legal issues. One of their key roles is to promote...
  • Hyperexplexia Contact Group