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Self Help UK

Self Help Groups

  • Hypermobility Syndrome Association

    The Hypermobility Syndrome Association (HMSA) is a charity run by and for people diagnosed with the Hypermobility syndrome (HMS). The HMSA aims to provide support and information to those affected by HMS and to promote knowledge and understanding within the medical community and the public at...
  • Hypoparathyroidism UK

    Hypoparathyroidism (HPTH) UK is the UK’s only organization dedicated to supporting all those affected by Hypoparathyroidism, Hyperparathyroidism and related parathyroid disorders. HPTH UK is recognized by the Society for Endocrinology and the British Thyroid Association and is run voluntarily by...
  • James Stewardson Research and Welfare Trust for Children with TPI

    The charity was formed in 1994 shortly after the founders' one year old son James was diagnosed with the rare, progressive and terminal condition - triose phosphate isomerase deficiency. Triose phosphate isomerase deficiency is an inborn metabolic disorder that is inherited causing an enzyme...
  • Klinefelter Organisation

    Membership of the Klinefelter Organisation brings the following benefits for £12.00 per year pro rata:- Copies of their quarterly newsletter - The Link Help, advice and information. Invitation to attend any meetings the KO holds for its members. Phone call within one month of joining....
  • Klinefelter's Syndrome Association

    The Klinefelter's Syndrome Association (KSA) supplies information by letter or over the phone, produces a newsletter and maintains contacts with (KS) groups abroad where they exist. The Association also seeks to provide up-to-date information on the syndrome to enquirers. Please enclose a...
  • Laurence-Moon-Bardet-Biedl Society

    Laurence-Moon-Bardet-Biedl (LMBB) syndrome is a rare, recessively inherited disorder which affects approximately 1 in 100,000 babies born. The LMBB Society is a group of parents, affected individuals and interested professionals with a wide range of experiences and knowledge to share. It supports...
  • LEOPARD Syndrome Support Group

    Support/Information for parents with children and young adults with the multi-faceted LEOPARD syndrome.
  • Lowe Syndrome Association

  • Lowe Syndrome Trust

    Support for Lowe Syndrome (OCRL) and to raise funds for medical research
  • Marfan Association UK

    Support to members and sufferers, writing and issuing publications on the syndrome and undertaking sponsoring and participating in national research projects.