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Self Help UK
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Self Help Groups

  • Sickle Cell and Thalassaemia Information Centre

    Social and halth care support, information and counselling. Training and education
  • Smith-Magenis Syndrome Foundation

  • Society for Mucopolysaccaride Diseases

    Funds medical research. Co-ordinates 12 area support groups. Family group holidays, national conference
  • Society for Mucopolysaccharide Diseases (MPS

    A voluntary support group and registered charity representing over 1200 children and adults suffering from MPS and Related Diseases, their families, carers and professionals. Supported by voluntary donations and fundraising and managed by the members. Membership free for sufferers and their...
  • Soft UK

    Very comprehensive information pack and newsletters. Supports and links parents
  • Tall Persons Club GB & Ireland

    The Tall Persons Club GB & Ireland is dedicated to providing information for and promoting the interests of tall people. Whether you are tall yourself, know someone who is tall, or have children who are tall, this is the site with more practical information than any other. If height is an...
  • Tay Sachs and Allied Diseases Association

    Tay Sachs is a very rare disease, therefore all activities are limited, such as meetings and literature. The Association offers support and information to the families of Tay Sachs babies before and after birth. They offer telephone consultancy and general help in coping with the very distressing...
  • The CdLS Foundation UK & Ireland

  • The Children’s Mitochondrial Disease Network

    support; infomation; awareness about the inborn errors affecting energy metabolism
  • The Fragile X Society

    The Society aims to support families who are affected by Fragile X Syndrome and to promote greater understanding about Fragile X Syndrome. Fragile X Syndrome is the most common known cause of inherited learning disability, It affects 1 in 4000 boys and 1 in 6000 girls.