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Self Help UK
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Ichthyosis Support Group

Organisation name
Ichthyosis Support Group
Description
The Ichthyosis Support Group (ISG) was formed in 1997 by people impacted (in some way) by ichthyosis to create a network of parents, sufferers and medics to help individuals and families affected by the condition.
Street address
PO BOX 1404
City/Town
Bagshot
County
Surrey
Postcode
GU22 2LS
Main Phone No
0845 602 9202
Helpline Number
0845 602 9202
Main Contact: Name
Liz Dale
Main Contact: Job Title
ISG Administrator
Is this a national or local organisation?
National
Is there a local support network?
Yes
Details of support network
Regional contacts
Does the organisation provide free publications or leaflets?
Yes
Details of publications and leaflets
general leaflets, posters, postcard information
Does the organisation publish a newsletter?
Yes
Details of newsletter
quarterly newsletters and monthly bulletin
Does the organisation fund research?
Yes
Details of research
Annual grant given to 1 chosen applicant