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DebRA - Dystrophic Epidermolysis Bullosa Research Association

Organisation name
DebRA - Dystrophic Epidermolysis Bullosa Research Association
Description
DebRA is the national organisation working on behalf of people whose lives are affected by all forms of epidermolysis bullosa (EB). In addition to funding research into the condition, DebRA offers a range of services for people affected by EB.

DebRA's Aims are:

To provide continuing services and support to people whose lives are affected by EB.
To develop effective treatments for EB through the funding of research into the condition.
To promote best current practice in treatment.
To promote the well being of people with EB and their families and maintain their full integration into society.
To encourage the development of EB support groups around the world and to foster co-operation and liaison.
DebRA publishes a range of free booklets on all aspects of EB and also provides a telephone advice line. Specialist nurses, social workers and a dietitian are also funded to provide advice and assistance to people affected by the condition.

In addition, DebRA offers an advocacy service, enables people whose lives are affected by the condition to meet and share experiences, manages three holiday homes for use by people with EB and can, on occasion, help with financial grants.
Street address
DebRA House
13 Wellington Business Park
Dukes Ride
City/Town
Crowthorne
Postcode
RG45 6LS
Web Addresswww.debra.org.uk
Main Phone No
01344 771961
Fax
01344 762661
Is this a national or local organisation?
National
Is there a local support network?
Yes
Details of support network
See website for details
Does the organisation provide free publications or leaflets?
Yes
Details of publications and leaflets
See website for details
Does the organisation fund research?
Yes
Details of research
See website for details