Self Help Groups

Action on Gilbert's Syndrome
Action on Gilbert's Syndrome (GS) wants to do three things: Help support people with GS through information and sharing stories. Get more healthcare professionals understanding the real challenges of GS and how they can keep people better prepared for life with the condition. Develop the...
Addison's Disease Self-Help Group
UK support group for men, women and children diagnosed with Addison's Disease (or adrenal insufficiency). Sends newsletters and information and has an email discussion group.
AIH Support
The most popular websites for AIH information
Ballymena ME & Fibromyalgia Support Group
Providing much needed support, advice and information to all those affected by ME/CFS and/or Fibromyalgia including family, friends and carers.
Behcets Syndrome Society
UK patient support group. Registered charity. Run entirely by volunteers. Founded in 1983.
British Sjogren's Syndrome Association(BSSA)
Providing mutual support and information to individuals affected by Sjogren's Syndrome. Regional meetings are held regularly throughout the country.
Henoch Schonlein Purpura Support Group
This is a small contact group formed in 2003. It offers a listening ear and, where possible, linking for affected adults and families of affected children.
Histiocytosis Support Group
Hughes Syndrome Foundation
Hughes Syndrome is an autoimmune disorder which can present many clinical features, some of which can be life threatening, including strokes and thrombosis, and it can also be the cause of recurrent miscarriage. The good news is that, once diagnosed, Hughes Syndrome is potentially treatable; the...
Hypoparathyroidism UK
Hypoparathyroidism (HPTH) UK is the UK’s only organization dedicated to supporting all those affected by Hypoparathyroidism, Hyperparathyroidism and related parathyroid disorders. HPTH UK is recognized by the Society for Endocrinology and the British Thyroid Association and is run voluntarily by...