Self Help Groups

Action on Gilbert's Syndrome
Action on Gilbert's Syndrome (GS) wants to do three things: Help support people with GS through information and sharing stories. Get more healthcare professionals understanding the real challenges of GS and how they can keep people better prepared for life with the condition. Develop the...
Addison's Disease Self-Help Group
UK support group for men, women and children diagnosed with Addison's Disease (or adrenal insufficiency). Sends newsletters and information and has an email discussion group.
AIH Support
The most popular websites for AIH information
Behcets Syndrome Society
UK patient support group. Registered charity. Run entirely by volunteers. Founded in 1983.
British Sjogren's Syndrome Association
Providing mutual support and information to individuals affected by Sjogren's Syndrome. Regional meetings are held regularly throughout the country.
Histiocytosis Support Group
Hughes Syndrome Foundation
Hughes Syndrome is an autoimmune disorder which can present many clinical features, some of which can be life threatening, including strokes and thrombosis, and it can also be the cause of recurrent miscarriage. The good news is that, once diagnosed, Hughes Syndrome is potentially treatable; the...
ITP Support Association
The ITP Support Association is a UK registered charity which aims to promote and improve the general welfare of patients, and the families of patients, with Immune (Idiopathic) Thrombocytopenic Purpura.
Myasthenia Gravis Association
Myasthenia Gravis is an auto immune disease which is characterised by the fluctuating, sometimes fatal muscle weakness. The body's immune system, in the form of antibodies attacks and damages the nerve signal reception areas causing a breakdown in communication between nerve and muscle, which...
Myositis Support Group
The Myositis Support Group is the only UK charity focused solely on Dermatomyositis, Polymyositis, Inclusion Body Myositis and Juvenile Dermatomyositis.