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Self Help UK
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Hughes Syndrome Foundation

Organisation name
Hughes Syndrome Foundation
Description
Hughes Syndrome is an autoimmune disorder which can present many clinical features, some of which can be life threatening, including strokes and thrombosis, and it can also be the cause of recurrent miscarriage. The good news is that, once diagnosed, Hughes Syndrome is potentially treatable; the bad news is that, as the condition is relatively new, it often goes undetected or misdiagnosed. With your help we hope to raise the profile of Hughes Syndrome so that we can discover more about its causes, prevalence and treatment.
Street address
Louise Coote Lupus Unit
Gassiot House
St Thomas' Hospital
City/Town
London
Postcode
SE1 7EH
Main Phone No
0207 188 8217
Fax
0207 188 8217
Main Contact: Name
Kate Fitzpatrick
Main Contact: Job Title
Manager
Is this a national or local organisation?
National
Is there a local support network?
Yes
Details of support network
We have some local groups set up throughout the UK, Canada and the US.
Does the organisation provide free publications or leaflets?
Yes
Does the organisation publish a newsletter?
Yes
Details of newsletter
3 times a year as part of membership
Does the organisation fund research?
Yes