[Skip to content]

Self Help UK

Self Help Groups

  • Action on Gilbert's Syndrome

    Action on Gilbert's Syndrome (GS) wants to do three things: Help support people with GS through information and sharing stories. Get more healthcare professionals understanding the real challenges of GS and how they can keep people better prepared for life with the condition. Develop the...
  • Addison's Disease Self-Help Group

    UK support group for men, women and children diagnosed with Addison's Disease (or adrenal insufficiency). Sends newsletters and information and has an email discussion group.
  • AIH Support

    The most popular websites for AIH information
  • Behcets Syndrome Society

    UK patient support group. Registered charity. Run entirely by volunteers. Founded in 1983.
  • British Sjogren's Syndrome Association(BSSA)

    Providing mutual support and information to individuals affected by Sjogren's Syndrome. Regional meetings are held regularly throughout the country.
  • Henoch Schonlein Purpura Support Group

    This is a small contact group formed in 2003. It offers a listening ear and, where possible, linking for affected adults and families of affected children.
  • Histiocytosis Support Group

  • Hughes Syndrome Foundation

    Hughes Syndrome is an autoimmune disorder which can present many clinical features, some of which can be life threatening, including strokes and thrombosis, and it can also be the cause of recurrent miscarriage. The good news is that, once diagnosed, Hughes Syndrome is potentially treatable; the...
  • Hypoparathyroidism UK

    Hypoparathyroidism (HPTH) UK is the UK’s only organization dedicated to supporting all those affected by Hypoparathyroidism, Hyperparathyroidism and related parathyroid disorders. HPTH UK is recognized by the Society for Endocrinology and the British Thyroid Association and is run voluntarily by...
  • ITP Support Association

    The ITP Support Association is a UK registered charity which aims to promote and improve the general welfare of patients, and the families of patients, with Immune (Idiopathic) Thrombocytopenic Purpura.