Self Help Groups

Anorchidism Support Group (ASG)
The Anorchidism Support Group is based in England, and was formed in 1995 to serve and support any person, or families of boy's, with congenital (or acquired) absence of the testes. We provide a means of networking with affected families as well as education and information. We have members not...
ASBAH - Association for Spina Bifida and Hydrocephalus
ASBAH is the Association for Spina Bifida and Hydrocephalus. The Association provides support, information and advice for individuals with spina bifida and/or hydrocephalus and their families and carers. Regional offices and a network of ASBAH advisers cover most parts of England, Wales and...
Birth Defects Foundation
The Birth Defects Foundation (BDF) is a UK registered Charity, whose mission is to improve child health, aid families and create awareness. BDF is committed to funding basic, clinical and ethically approved research into causes, prevention and treatment of birth defects. BDF’s Here to Help...
Bladder Exstrophy Family Association
The Bladder Exstrophy Family Association is a non profit making support network for families of children born with bladder/cloacal exstrophy and/or epispadias
Caesarean Birth and VBAC Information
Offers research-based information and support on all aspects of caesareans and vaginal birth following caesarean section (VBAC).
Caring Matters Now
Caring Matters Now has the following aims: To support families suffering with congenital melanocytic naevus. To raise awareness of the condition, especially among medical professionals. To raise funds to keep the group running and to fund research for congenital melanocytic naevus...
CHARGE Family Support Group
CHARGE is the name given to a condition that has a number of associated anomalies. Initials of the most common features make up the name. These are as follows. Coloboma Heart defects Atresia of the choanae Retardation of growth and developmental delay Genital abnormalities Ear...
CLAPA. The Cleft Lip and Palate Association
CLAPA offers support and information to individuals and families affected by cleft lip and/or palate. Bottles and teats are available by mail order from the above address. Local Group contacts are available.
Clubfoot.co.uk
Clubfoot.co.uk provides web-based information and support for parents and carers and those with an interest in the condition (also known as talipes).
Congenital CMV Association
A parents self help group providing information, advice and support to families with a congenitally CMV affected member through a newsletter and by matching families for direct contact.