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Self Help UK

Self Help Groups

  • HME - Hereditary Multiple Exostoses Support Group

    The HME Support Group provides accurate and up to date information and the many aspects of living with the condition on a daily basis. Our support group is a great aid to those families who have been recently diagnosed and as a constant source of comfort to long-term sufferers. The effect on...
  • Hydatidiform Mole & Choriocarcinoma Support

    In the UK mole pregnancies occur at approximately 1 per 1000 registered births. It is known that the pregnancy goes wrong at the time of fertilisation of the egg by the sperm, but we don't yet know why this happens. There are two types of mole. It can be a "complete mole" in which there...
  • iFace

    Website offering support, advice and a place to talk for young people aged 11-21 who are affected by any kind of disfigurement of the face and body, and their siblings and friends
  • Ivemark Syndrome Support Group

    The Ivemark Syndrome Association aims to provide emotional support to anyone who has or knows a child affected by this rare syndrome (also known as Right Atrial Isomerism). Where possible, the Association hopes to link families to share helpful information. It has contacts worldwide
  • Lissencephaly Contact Group

    See www.lissencephaly.org.uk
  • Microcephaly Support Group

    Advice and information
  • Naevus Support Group

  • Stillbirth and Neonatal Death Society (SANDS)

  • Thalidomide Trust (The)

  • The Birthmark Support Group

    The Birthmark Support Group offers information to anyone affected by a birthmark (including port wine stain, haemangioma and congenital melanocytic naevus). The group produces newsletters, medical information packs and offers contact with others in similar situations. The website is regularly...