Self Help Groups

Aplastic Anaemia TrustThe Aplastic Anaemia Trust incorporates the AA Support Group. It offers support to anyone coping with aplastic anaemia and puts families in touch with others who understand what it is like to live with this disease. The AA Support Group aims are as follows: To act as a support network, linking...
Blood Pressure AssociationHigh blood pressure/hypertension, infomation and support
CHILDREN with LEUKAEMIACHILDREN with LEUKAEMIA is one of the UK’s leading charities dedicated to fighting Britain’s biggest childhood cancer. For more than 20 years they have been helping children affected by leukaemia. Although leukaemia can now be successfully treated in the majority of children, it still has...
CML SupportA support group for people with chronic myeloid leukaemia (CML). Their website is published and maintained by CML patients and carers, for the use of CML patients, their families and carers. Their aim is to provide support and updated information regarding the best available therapy for CML...
Degos Patients' Support NetworkAdvice, support and a forum for Degos patients, their families and medical advisers,wherever they are in the world. Opportunity to contribute to groundbreaking research in Berlin.
Fanconi Anaemia Breakthrough UKThe Group is a Contact Group, established in January 1989. It raises funds for medical and genetic research at Guy's Hospital, London. In addition, it encourages fundraising for F.A.B. UK's Family Comfort Fund. It has information available, details on request. The Group responds to affected...
Fanconi Hope Charitable TrustFanconi Hope is a national charitable trust set up by parents of Fanconi Anaemia (FA) affected children and clinicians with an interest in FA, to fund a UK FA national registry, to promote research that might benefit FA-affected children and to provide information to affected families.
Glanzmann's Thrombasthenia Support GroupGlanzmann's Thrombasthenia is an abnormality of platelets, which are involved with clotting of the blood. The support group was founded by a parent of a child diagnosed with the condition. Its main aim is to help the parents of newly diagnosed children in the following ways. Sharing family...
Haematuria sufferersA new support group for people with this condition
Haemophilia SocietyAdvice and support for people with haemophilia and their families, and for those with HIV contracted through contaminated blood concentrates used in treatment.