Self Help Groups

Blood Pressure Association
High blood pressure/hypertension, infomation and support
Degos Patients' Support Network
Advice, support and a forum for Degos patients, their families and medical advisers,wherever they are in the world. Opportunity to contribute to groundbreaking research in Berlin.
Fanconi Anaemia Breakthrough UK
The Group is a Contact Group, established in January 1989. It raises funds for medical and genetic research at Guy's Hospital, London. In addition, it encourages fundraising for F.A.B. UK's Family Comfort Fund. It has information available, details on request. The Group responds to affected...
Haematuria sufferers
A new support group for people with this condition
Haemophilia Society
Advice and support for people with haemophilia and their families, and for those with HIV contracted through contaminated blood concentrates used in treatment.
Hepatitis Education & Awareness Lothian
A self help group disseminating informative leaflest and newsletters to the HCV+ community along with help line
Meningitis Research Foundation
Meningitis Research Foundation is a national charity that fights death and disability from meningitis and septicaemia, and supports people affected by these diseases. The Foundation funds vital scientific research into the prevention, detection and treatment of meningitis and septicaemia, raises...
Raynaud's & Scleroderma Association
Charity raises funds for research and offers help and support to health professionals, sufferers and carers.
Sickle Cell Society
provides support to people with this genetic disorder causing mental handicap
TAR - Thrombocytopenia with Absent Radii Support Group
Support and information for parents.