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Self Help UK
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Fanconi Hope Charitable Trust

Fanconi-Hope
Organisation name
Fanconi Hope Charitable Trust
Description
Fanconi Hope is a national charitable trust set up by parents of Fanconi Anaemia (FA) affected children and clinicians with an interest in FA, to fund a UK FA national registry, to promote research that might benefit FA-affected children and to provide information to affected families.
Street address
PO Box 905
City/Town
Southsea
County
Hampshire
Postcode
PO1 9JG
Main Phone No
0845 271 2811
Helpline Number
0845 271 2811
Helpline: Hours of operation
9am - 8pm
Main Contact: Name
Bob Dalgleish
Main Contact: Job Title
Charity Secretary
Is this a national or local organisation?
National
Is there a local support network?
No
Details of support network
Details of support network
The Support Network provides information for affected families. Contact can be made by phone, by writing to the address above or by e-mailing via the website
Does the organisation provide free publications or leaflets?
Yes
Details of publications and leaflets
Information downloadable from the website
Does the organisation publish a newsletter?
Yes
Details of newsletter
Available via the website or by post on request
Does the organisation fund research?
Yes
Details of research
The charity will contribute to translational research that might benefit FA-affected children