Self Help Groups

Hepatitis Education & Awareness Lothian
A self help group disseminating informative leaflest and newsletters to the HCV+ community along with help line
Jessica's Trust
Jessica's Trust aims to raise awareness of childbed fever (puerperal fever or puerperal sepsis). Childbed fever is an infection of the womb in new mothers which can lead to septicaemia (blood poisoning). Childbed fever infections are rare, but they can happen to anybody, and can be fatal. The...
Lifeblood: The Thrombosis Charity
Lifeblood was established in 2002 by a group of people who recognise the need to promote awareness about thrombosis and to increase understanding of its causes, effects and the treatment available. Lifeblood wishes to increase awareness of thrombosis among the public and health professionals and...
Lymphoma-net.org
Lymphoma-net.org aims to help improve communication about non-Hodgkin's lymphoma and its treatment. Lymphoma-net.org contains a wealth of background materials that patients and carers can refer to in their own time, helping them to have better-informed discussions about non-Hodgkin's lymphoma and...
Meningitis Research Foundation
Meningitis Research Foundation is a national charity that fights death and disability from meningitis and septicaemia, and supports people affected by these diseases. The Foundation funds vital scientific research into the prevention, detection and treatment of meningitis and septicaemia, raises...
MPD-Support
MPD-Support is a website aimed at everyone who has an interest in the complex area of myleoproliferative disorders (MPD). These include: essential thrombocythaemia (ET), polycythaemia vera (PV), and myelofibrosis (MF). It aims to provide: support, information, useful contacts and assist choice,...
Raynaud's & Scleroderma Association
Charity raises funds for research and offers help and support to health professionals, sufferers and carers.
Sickle Cell Society
provides support to people with this genetic disorder causing mental handicap
TAR - Thrombocytopenia with Absent Radii Support Group
Support and information for parents.
Williams Syndrome Foundation Ltd
Information, contact, acquiring information, assisting and funding research