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Self Help Groups
Chartered Society of Physiotherapy
The Chartered Society of Physiotherapy is a professional organisation with the aim of supporting and promoting its members and their profession thus ensuring the best possible care is available to patients wherever they are. The Society's website includes information for the general public on what...
Ehlers-Danlos Support Group
A support group for sufferers of Ehlers-Danlos Syndrome and their families. We provide information and advice, and can also put sufferers in contact with others in their area.
Jennifer Trust for SMA
The Jennifer Trust for Spinal Muscular Atrophy is a national charity in the UK dedicated both to supporting people affected by SMA, and investing in essential research into causes, treatments and eventually a cure for the condition. The Jennifer Trust provides a range of services to support...
LEPRA
Since 1924, LEPRA has been caring for and curing people of leprosy with the aim of eradicating this disease. The development of a simple and cheap treatment called MDT in 1982(multidrug therapy) now makes this objective possible. Early identification and treatment is essential in order to prevent...
LUPUS UK
Newsletters and list of self-help groups. Factsheets on varied presentation of lupus and books for sale.
Relapsing Polychondritis Support Group
The Relapsing Polychondritis Support Group was founded in 1987 by Clifford Ashworth. The aims of the group are to offer support and information, locate sufferers of RP and also to raise awareness of this rare disease among the public and medical profession
United Kingdom Adhesion Society
The UK Adhesion Society, UKAS is a voluntary organisation dedicated to promoting awareness, aiding research and working towards improved treatments, while bringing comfort and hope to those diagnosed with a debilitating condition known as ARD (Adhesions Related Disorders) a distressing condition...
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