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Self Help UK

Spinal Muscular Atrophy Support UK

Organisation name
Spinal Muscular Atrophy Support UK
The Spinal Muscular Atrophy Support UK is a national charity in the UK dedicated both to supporting people affected by SMA, and investing in essential research into causes, treatments and eventually a cure for the condition.

The Spinal Muscular Atrophy Support UK provides a range of services to support people affected by SMA, their families and their carers.

Outreach Service - they have a team of professional outreach workers who can visit families affected by SMA and offer personalized support, information and advice. Their outreach workers cover the whole of the United Kingdom and are available to answer questions, help you understand SMA, and to offer support from the moment of diagnosis onwards.

Contact Volunteer Network - their national network of trained volunteers can offer emotional support to anyone affected by SMA based on their own personal experience of living with the condition or caring for someone with it.

Information Service - their comprehensive information service can help answer any queries you may have about SMA. They can also signpost you to other organisations or people who may be able to assist.

Spinal Muscular Atrophy Support UK also

Produces fact-sheets and newsletters.
Maintains their website as the definitive online source of information about SMA.
Makes financial grants towards the cost of specialist equipment.
Operates an equipment and sensory toy loan service.
Organises conference, educational events and social gatherings.
Provides ongoing family support following bereavement.
Links to other support organisations.
Lobbies for better services for people affected by SMA.
Works with other international SMA organisations.
Street address
Elta House
Birmingham Road
CV37 0AQ
Web Addresswww.jtsma.org.uk
Main Phone No
Helpline Number
Helpline: Hours of operation
Best time to telephone: 9am - 5pm
Is this a national or local organisation?
Is there a local support network?
Not applicable
Details of support network
See website
Does the organisation provide free publications or leaflets?
Details of publications and leaflets
See website
Does the organisation fund research?
Details of research
See website