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Self Help UK
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Ehlers-Danlos Support Group

Organisation name
Ehlers-Danlos Support Group
Description
A support group for sufferers of Ehlers-Danlos Syndrome and their families. We provide information and advice, and can also put sufferers in contact with others in their area.
Street address
PO Box 337,
City/Town
Aldershot
Postcode
GU12 6WZ
Main Phone No
01252 690940
Main Contact: Name
Libby Godden
Main Contact: Job Title
Administrator
Is this a national or local organisation?
National
Is there a local support network?
Yes
Details of support network
For our members,- we provide local area contacts.
Does the organisation provide free publications or leaflets?
No
Does the organisation publish a newsletter?
Yes
Details of newsletter
We publish a Newsletter called Fragile Links. Contact us either by phone or e-mail for further information.
Does the organisation fund research?
Yes
Details of research
We try to help fund research into treatments and ultimately a cure for Ehlers-Danlos Syndrome.