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Self Help UK
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UK Moebius Syndrome Support Group

Organisation name
UK Moebius Syndrome Support Group
Description
Moebius Syndrome is characterized by a paralysis of the 6th and 7th cranial nerves resulting in a lack of facial expression, lateral eye movement and blinking. The Moebius Syndrome Support Group offers the following services.

Newsletter
Networking - contact with other families affected by the syndrome
Information - including a leaflet describing possible symptoms and a website with a description of the condition, its treatment and links to other resources.
Referrals
Phone support
Fundraising
Research
Two-yearly conference
Street address
R7, Linskill Centre
City/Town
North Shields
County
Tyne & Wear
Postcode
NE30 2AY
Main Phone No
0191 2964050
Fax
0191 2964050
Is this a national or local organisation?
National
Is there a local support network?
Not applicable
Does the organisation provide free publications or leaflets?
Yes
Does the organisation publish a newsletter?
Yes
Does the organisation fund research?
Yes