Self Help Groups

AMEND (Association for Multiple Endocrine Neoplasia Disorders)AMEND is a patient support group (registered charity no. 1099796) set up in 2002 in order to offer help and information for the rare genetic conditions of MEN1 and 2. We provide quarterly newsletters, research updates and telephone or email support.
Association for Cushing's Treatment and HelpThe ACTH are a support group for people suffering from all forms of Cushings syndrome.
British Diabetic AssociationOffers advice about diabetes care, diet, family weekends, holidays for children, and literature on all aspects of diabetes.
Cushing's CareAdvice for steroid-induced Cushing's syndrome or adrenal tumours causing Cushing's disease. Information and telephone contact with other affected families.
Insulin Dependent Diabetes TrustTo help and support people with diabetes and their families, especially those that experience adverse effects from GM produced synthetic 'human' insulin.
National Diabetic FederationHelp with related side effects.
The Pituitary FoundationPituitary disorders including Hypopituitarism, Acromegaly, Cushings, Diabetes Insipidus, Prolactinoma
The Testosterone Deficiency CentreThe TDC offers support and assistance in navigating the Testosterone Deficiency minefield.
UK PHHI Support GroupI run a support group for PHHI (Persistant Hyperinsulinaemic Hypoglycaemia of Infancy), also known as Congenital Hyperinsulinism (CHI) and formerly known as Nesidioblastosis