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Self Help UK
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UK PHHI Support Group

Organisation name
UK PHHI Support Group
Description
I run a support group for PHHI (Persistant Hyperinsulinaemic Hypoglycaemia of Infancy), also known as Congenital Hyperinsulinism (CHI) and formerly known as Nesidioblastosis
Street address
17 Bridge End Lane, Great Notley
City/Town
Braintree
County
Essex
Postcode
CM77 7GN
Main Phone No
01376 528569
Helpline: Hours of operation
Mon - Fri
10am - 4pm
Main Contact: Name
Julia Killengray
Main Contact: Job Title
Mrs
Is this a national or local organisation?
National
Is there a local support network?
No
Does the organisation provide free publications or leaflets?
No
Does the organisation publish a newsletter?
Yes
Details of newsletter
The support group once a year and the charity every 3 months.
Does the organisation fund research?
Yes
Details of research
The Children's Hyperinsulinism Fund which is linked to the support group is raising money for research.