[Skip to content]

Self Help UK

Self Help Groups

  • AMEND (Association for Multiple Endocrine Neoplasia Disorders)

    AMEND is a patient support group (registered charity no. 1099796) set up in 2002 in order to offer help and information for the rare genetic conditions of MEN1 and 2. We provide quarterly newsletters, research updates and telephone or email support.
  • Association for Cushing's Treatment and Help

    The ACTH are a support group for people suffering from all forms of Cushings syndrome.
  • British Diabetic Association

    Offers advice about diabetes care, diet, family weekends, holidays for children, and literature on all aspects of diabetes.
  • Cushing's Care

    Advice for steroid-induced Cushing's syndrome or adrenal tumours causing Cushing's disease. Information and telephone contact with other affected families.
  • Insulin Dependent Diabetes Trust

    To help and support people with diabetes and their families, to provide information of many aspects of diabetes and to ensure that they have an informed choice of treatment.
  • National Diabetic Federation

    Help with related side effects.
  • The Pituitary Foundation

    Pituitary disorders including Hypopituitarism, Acromegaly, Cushings, Diabetes Insipidus, Prolactinoma
  • The Testosterone Deficiency Centre

    The TDC offers support and assistance in navigating the Testosterone Deficiency minefield.
  • UK PHHI Support Group

    I run a support group for PHHI (Persistant Hyperinsulinaemic Hypoglycaemia of Infancy), also known as Congenital Hyperinsulinism (CHI) and formerly known as Nesidioblastosis