The web site is the home of the International Costello Syndrome Support Group. The support group has 90 families across the world.
The support group was formally set up in 1998 in order to provide information and mutual support through their own knowledge and understanding of their children.
The support group is a place where learning can be sought from each other for the benefit of the children. On the web site you will find photos, extracts from publications, as well as a wealth of other information that may be of help to parents.