Self Help Groups

CMD Support
Congential Adrenal Hyperplasia
Support and information
Corpal
Information and advice for families of a child with corpus callosum, including Aicardi's Syndrome
Costello Kids
The web site is the home of the International Costello Syndrome Support Group. The support group has 90 families across the world. The support group was formally set up in 1998 in order to provide information and mutual support through their own knowledge and understanding of their children....
Cystinosis Foundation United Kingdom
The aims and objectives of the Cystinosis Foundation United Kingdom are: Patient support - to provide support to anyone diagnosed with cystinosis, as well as their families. Parents and the adult patients will be offered information on an advisory level about the condition and about referrals....
DebRA - Dystrophic Epidermolysis Bullosa Research Association
DebRA is the national organisation working on behalf of people whose lives are affected by all forms of epidermolysis bullosa (EB). In addition to funding research into the condition, DebRA offers a range of services for people affected by EB. DebRA's Aims are: To provide continuing services...
Diamond Blackfan Anaemia Support Group
Diamond Blackfan Anaemia Support Group is the UK based parent support group for the condition Diamond Blackfan Anaemia (DBA), and a registered charity. The support group is made up of parents, family and friends of patients with DBA, along with the patients themselves. The charity aims to...
DNA Bioscience
DNA Bioscience is a DNA testing company, focused on the development and marketing of innovative genetic testing products and services. Tests include paternity tests and DNA tests for legal purposes.
Down Syndrome Educational Trust
The Down Syndrome Educational Trust is a charitable company, registered in England and Wales. It provides expert advice and training in the specific needs of children with Down syndrome, to a wide range of individuals, including parents, teachers, psychologists, speech and language therapists and...
Down's Heart Group
Support and information for families who have a member with Down's Syndrome and associated congenital heart defects.