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Self Help UK
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Self Help Groups

  • Achondroplasia.co.ukAchondroplasia is the most common form of short limb dwarfism. Achonodroplasia.co.uk has been set up to provide support and information to those affected by the condition and those caring for them - both parents and professionals. The site includes in depth information on the condition, its...
  • Beckwith-Wiedemann Support GroupWe provide information and support for parents of children with Beckwith Wiedemann Syndrome.
  • Child Growth FoundationSupport for parents of children with growth disorders. Also publishes 'Baby Check' , a 90-second checklist to determine whether babies up to six months old need medical attention, which includes a rectal thermometer.
  • Restricted Growth AssociationWorking for people and families with restricted growth conditions