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Self Help UK

Barth Syndrome Trust

Organisation name
Barth Syndrome Trust
The Barth Syndrome Trust was created in the United Kingdom (Registered Charity Number 1100835) in order to better serve the needs of affected families here in the UK and in the rest of Europe.

The Barth Syndrome Trust aims to increase awareness amongst health professionals and the general public both to facilitate accurate diagnosis and to provide continuing support to affected families after diagnosis.
Is this a national or local organisation?
Is there a local support network?
Not applicable