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Self Help UK
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Dancing Eye Syndrome Support Trust

Organisation name
Dancing Eye Syndrome Support Trust
Description
The Dancing Eye (Opsoclonus Myoclonus) Syndrome Support Trust aims to give information and telephone support to families with children with dancing eye syndrome, also known as Kinsbourne syndrome. Other activities include the following:

Arranging an annual meeting which includes talks by medical experts in this field.
Arranging a weekend get-together for families in the Trust.
Producing a newsletter twice a year.
The following publications are available from the Trust: Dancing Eye Syndrome; Neuroblastoma and Dancing Eye Syndrome.


Street address
78 Quantock Road



City/Town
Worthing
County
West Sussex
Postcode
BN13 2HQ
Main Phone No
01903 532383
Fax
01903 532383
Is this a national or local organisation?
National
Is there a local support network?
Yes
Details of support network
See website for details
Does the organisation publish a newsletter?
Yes
Details of newsletter
See website for details