Angioma Alliance UK is a charity created by people affected by cavernous angioma otherwise known as cerebral cavernous malformations or cavernomas. Their mission is to improve the quality of life for those affected by cavernomas through education, support, and promotion of research.
Their website provides:
Information about the illness with in-depth articles on topics of special interest
Networking and support opportunities
Updates on research findings
Research study enrolment information