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Self Help UK

Self Help Groups

  • Xeroderma Pigmentosum Support Group

    The Xeroderma Pigmentosum Support Group is a UK charitable trust founded in 1999 by parents of a child with xeroderma pigmentosum. The group aims to relieve the needs of persons with xeroderma pigmentosum and other related conditions, and their families. The Group raises funds for research,...
  • XLH Network

    The XLH Network was formed in November 1996 as an international volunteer group of people affected by or interested in XLH, or X-Linked Hypophosphatemia. The XLH Network provides members with up-to-date information on diagnosis, treatment and the very latest research. Through the F-HYPDRR mailing...